So.... here's a little story. It actually happened last year, but at the time I was too down to write about it.
I moved to Germany (which I believe I have mentioned before that it made my skin a lot worse compared to the western united States where it's dry, crazy I know).
Anyway... I was looking for a little job. I actually graduated in Illustration. But I thought to myself I would just get a little part time job so I could stay and try to illustrate on the side because it is difficult to just get an illustration ob. Most work independantly. Well.... I applied at this drug store on the floor where they sell CD's. I thought perhaps I could do that. I was introduced to the store manager... who saw my condition and didn't hesitate to ask if I had exhema. I said yes, because I didn't really want to get into the whole thing and plus it's none of her buisnes anyway. Well she looked at me and straight out told me she wouldn't hire me because of my condition. This, as you could perhaps imagine really hurt. I pulled myself together while I was talking to her, but when my mom asked me how it went I kind of lost it and just started crying. Thank goodness this was my first time of that happening to me so directly and I had had several other jobs before. But I was discouraged none the less. But my sister and the drive of the holy spirit got me to get right up and apply again. But this time for something I really wanted to do. I applied the same day or perhaps the next for a job as a graphic designer even thought I didn't know if I was qualified for it. I got an interview the next day and to my complete surprise they needed an illustarator... my dream job! I've had it for a year now and all my co workers and boss are very understanding of my condition. I unfortunetly leave dry skin everywhere I go. I can't help it. But no one complains to me about it. Perhaps among themselves I don't know... but like I said. Nothing I can do.
I have Netherton Syndrome. This is an extremely rare genetic skin condition I was born with. I want to write a little bit about how this affects my life.
Saturday, October 15, 2011
Sunday, April 10, 2011
Mysteries unfolded
So, I have to admit I took quite a break from writing on here. For the most part it was because I don't like to think too much about the condition. But then those times come where I wonder if others could perhaps help out with solving some of my mysteries. What I mean is sometimes there are some health problems and I wonder: "Is this because of my condition?" or is it something else. The reason I wonder is for example... I just discovered last summer after years of having this that I had foot fungus... gross I know. But the sad thing is I didn't realize because my skin is always peeling, so how should I know? Well, thank goodness that was figured out. Another example: I seem to get more cold than other people and I got head exhaustion much quicker than others too. Well, I read up on it one day and it said that people that have this condition, get cold easier and need it a bit warmer than room temperature, especially for children ( I remember that being difficult always having to go out in cold weather during recess). We are also more likely to get heat exhaustion much much quicker because the skin is what regulates our body temperature and when it's not in tact it doesn't work as well. Well, have many more examples and many more I would like to figure out... My question would be to anyone who has the condition or has kids with it is.... I seem to get constipated more than I would like to and diarreah. I've been having a really hard time just digesting food normally. My stomach doesn't feel good after I eat and I also get bloated. I have a lot of food allergies, so it may have to do with that. Any ideas? The weird thing is just that it's been like this off and on for 9 months, ever since I moved.
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