I have Netherton Syndrome. This is an extremely rare genetic skin condition I was born with. I want to write a little bit about how this affects my life.
Saturday, September 25, 2010
better and worse
So, this is why I don't like it when people judge my skin condition... like "it's gotten worse" or "it's gotten better". It just goes back and forth. It gets worse. It get's better. What I eat doesn't make a difference. It seems to just go in cycles. I've had it for 26 years and I still haven't figures it out yet and it surprises me when others that don't have it think they have. Best is just not to worry about it too much and look forward to the good times and enjoy them when they're there.
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